This research-based tip sheet provides tips for parents who receive news about their expected child or their newborn’s developmental disability. Among the most common disorders identified through prenatal screening and testing are Down syndrome, fragile X syndrome, spinal muscular atrophy, cystic fibrosis, Edwards’ syndrome, spina bifida, and neural tube defects like anencephaly. Topics covered in this tip sheet include realizing that parents are not alone if they experience a child’s diagnosis with a developmental disability and tips for what they can do to create a hopeful future for themselves as a couple and for their child. This information will be useful for both parents and service providers who work directly with parents.
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Tips for Parents Who Learn Their Newborn Has A Developmental Disability